Resources
Links to websites for patients and researchers
Resources for MDS Patients and Researchers
The National Myelodysplastic Syndromes Natural History Study was funded by the National Heart, Lung, and Blood Institute to collect baseline and longitudinal samples and data from patients across the US with suspected Myelodysplastic Syndrome. The study has closed, but this rich dataset and biospecimens will be available in the future from BioLINCC
Aplastic Anemia and Myelodysplastic Syndromes International Foundation
Blood Cancer United (formerly Leukemia and Lymphoma Society)
The American Society of Hematology
Other Resources for MDS Researchers
DresnerFoundation
Gabrielle’s Angel Foundation
The Taub Foundation/The Medical Foundation
The V Foundation
RUNX1 Research Program