The National MDS Study
The National Myelodysplastic Syndromes Natural HIstory Study was lauched in the spring of 2016. Many years in the planning, this collaboration between the National Heart, Lung, and Blood Institute and the National Cancer Institute will collect detailed information and tissue samples from patients over time. This invaluable national resource will used by medical researchers to develop more effective treatments and improve the lives of patients.
The National MDS Study Site
(For Institutions) How To Register
Links to websites for patients and researchers
Resources for MDS Patients and Researchers
Aplastic Anemia and Myelodysplastic Syndromes International Foundation
Global Pediatric MDS Initiative
The MDS Foundation has put together an exciting new web site, “You and MDS: An Animated Patient’s Guide to Myelodysplastic Syndromes“. It’s a great resource to learn about the disease, diagnosis, and current treatments.
Leukemia and Lymphoma Society
The American Society of Hematology
Other Resources for MDS Researchers
Gabrielle’s Angel Foundation
The Taub Foundation/The Medical Foundation
The V Foundation